Thursday, April 18, 2013

Absent for almost a year!

Hey everyone, well when I say absent for a year I mean me not my disease! Welp besides graduating College and getting a real persons job which is nuts! I have been doing well in life in general. I have met the most perfect guy ever and I think he really is the one (insert sappy music here).

But, as for my health...well that has taken a horrible spiral downward. So I thought I was doing better, I was only have a few days here and there where I was having really bad days. I went back to my Dr. in January after having a few bad flare ups with my colitis and he decided to add another medication onto my daily regime. So I was up to 9 pills a day I think? Well I thought the first month it helped till February hit and I started getting constantly sick. Aches and pains have been a constant thing since February and still are now. So then mid February till now I have lost 10-15 pounds. No I didn't try, nor was I dieting or working out. So that's not really good. Thankfully I am still at a healthy weight. I have also been urinating 20-25+ times a day along with going at least once per night. I got check at my Primary Dr. for a bladder infection and diabetes and everything came back normal.

So onto recently! The last month I can hardly get out of bed in the morning. I always make sure I get 8 hours of sleep per night and I still can not pull myself out of bed. Thank god I work a desk job everyday because I would be face planting at work if I didn't. I still feel aches and pains and it really just feels like I have had the flu for 2+ months. Along with having BM's (bowel movements) most days 3-5 times but can be up to 10!

Today I am heading to my GI after work and I am nervous and relieved at the same time. I am demanding I get my meds switched or I get put on something like Humira (weekly injection) or Remicade (infusion every 6 weeks). I know both of those are drastic but they have been proven to help put people in remission which is my overall goal! Hopefully my Dr. can agree with me or I might have to think about switching my Dr. Sometimes I feel like he is so nonchalant about things and just likes to wait and see what happens. Drives me insane!

Welp wish me luck! I will let you all know what happens

Bye for now!

Tuesday, May 1, 2012

Introduction

Hey Everyone,

I am starting this blog today to tell my story about how I am constantly struggling with health issues. I'll start by saying that I am a 22 year old female who is 1 week away from graduating college with a B.A. Degree in Psychology. I have been officially diagnosed with Ulcerative colitis in August 2011, though I have been struggling with stomach issues since my sophomore year in college. I have also been a competitive athlete on my College Swimming and Diving team throughout my 4 years here at school, so having stomach issues was not a fun time when having to put a swim suit on everyday. 


Ulcerative colitis is long-lasting disease that inflames the lining of the large intestine (the colon) and rectum. I know pretty exciting stuff. Such symptoms that I have had include; dehydration, severe abdominal pain to the point of not being able to get out of bed, fever, and very VERY sudden bowel movements. Now when I say sudden, let me just elaborate on this for a moment.... their have been several occasions where I could be eating a meal and I will have to get up from the table and run to the bathroom because I am needing to go that badly. Needless to say I don't go to restaurants very often anymore. 

So how I found out I had this was also a horrible experience. I went to my normal doctor multiple times during my Junior year of college and she just figured it was college food that was upsetting my stomach, even though at the time I no longer lived on campus and was cooking for myself. So over the summer I went again and she referred me to a doctor who specializes in stomach stuff (gastroenterologist) and he asked me a million and one questions and then decided I needed more blood work and then a Colonoscopy.... oh how I never wish this on anyone. Well, the colonoscopy part wasn't a big deal at all because I was knocked out and when I woke up I couldnt even tell they did anything. But the worst part was having to drink a bunch of laxatives 2 whole days before going. I felt like I was constantly sitting on the toilet. Not a very fun time.

So after I did that he also had me go and get an upper GI done. This is when you drink a really nasty chalky mixture and they take pictures of it going down through your stomach and intestines. This wasn't horrible, it just took like 2 hours. So after all my tests came back I went back to him and he told me that I indeed had Ulcerative Colitis. He prescribed me my first medication which I only took 3 pills in the morning. This worked for a little while but then started only helping me for my breakfast and nothing else, and my symptoms were going back to the way they were before. So I went back over thanksgiving and got prescribed my new medication that I am on now which I take 2 pills before every meal. Now this usually works but their are times when it doesn't. 

So I just wanted to go into an introduction today, see how this goes. Then I plan to go into more day to day stories about different challenges I face being a 22 year old who now can't eat or drink half the things I use too. Restricting me from doing things more people my age can. Hope you all Enjoy!! <3 <3